Humanization of Pediatric Oncology Care: An Experience Report of Hospital Visits Developed by a Civil Society Organization

Introduction:
Childhood cancer affects not only patients but also the emotional, social, and economic well-being of their families. Prolonged hospitalizations, treatment-related limitations, and the need for caregivers to leave employment may intensify social and financial vulnerability. In this context, civil society organizations can play an important complementary role in promoting comprehensive and humanized care. This study aims to report the experience of a Brazilian civil society organization that provides continuous psychosocial, recreational, nutritional, financial, and bereavement support to children and adolescents with cancer and their families.

Methods:
This experience report describes activities developed by the organization with pediatric oncology patients and their families. Hospital-based actions are conducted approximately weekly and include music, painting, animal-assisted activities, cultural celebrations, seasonal events, and the realization of patients’ dreams. In addition, the organization distributes more than 200 basic food baskets monthly to families experiencing socioeconomic vulnerability, maintains a clothing bazaar to support fundraising, and provides continued assistance for six months following the death of a patient.

Results:
The experience demonstrates the value of sustained, multidimensional support throughout the cancer care trajectory. Hospital activities provide opportunities for play, social interaction, emotional expression, distraction, and positive experiences during prolonged treatment and hospitalization. Families frequently report the importance of the organization’s presence, particularly for children and adolescents who remain hospitalized for extended periods. Food and financial assistance help address material vulnerability, while post-bereavement support extends care to families during a period of profound loss and socioeconomic instability.

Conclusions:
This experience highlights the potential of civil society organizations to complement formal healthcare services through continuous, multidimensional, and family-centered support. Integrating psychosocial, recreational, cultural, nutritional, financial, and bereavement initiatives may contribute to a more compassionate and comprehensive pediatric oncology care experience.