The evolving landscape of brain and neurological sciences demands an integrative approach that prioritizes patients’ perspectives within clinical decision-making. Traditional models of care often rely predominantly on clinician-defined outcomes, with limited incorporation of the patient’s lived experience. This study introduces a neurocentric, patient-informed framework that integrates digital health tools with outcome measurement systems to enhance responsiveness and personalization in neurological and neuropsychiatric care.
A mixed-methods evaluation was conducted involving 126 patients diagnosed with chronic neurological conditions (stroke, Parkinson’s disease, and mild cognitive impairment). Participants interacted with a digital platform combining self-reporting modules, wearable sensor data, and validated outcome measures, including patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs). Care teams accessed real-time analytics on symptom variations, treatment adherence, and well-being, supporting data-informed adjustments to individualized care plans.
Results demonstrated that systematic collection and analysis of patient-reported data were associated with a 34% improvement in care compliance, a 21% reduction in hospitalizations, and a 42% increase in reported satisfaction. Qualitative findings highlighted improved communication and mutual understanding between patients and clinicians, reinforcing the emotional dimension of therapeutic interaction. Statistical modeling confirmed a strong correlation (r = 0.81, p < 0.01) between patient-reported engagement levels and favorable clinical outcomes.
This work underscores that integrating PROMs, PREMs, and digital monitoring can enhance patient-informed care and adaptive decision-making in neurological practice. While not constituting a full patient–clinician partnership, this approach strengthens recognition of the patient’s experiential knowledge and sets the stage for future co-constructed care models that promote autonomy and empowerment in neurological health management.
